
Yesterday we took Daniel to the Ear Nose Throat (ENT) doctor at CHOP. He also had a hearing test scheduled. We were told in China by the orphanage nannies that Daniel had had some ear problems. This is not surprising in a cleft palate child. When we first came home and saw several doctors we were told "just wait and see" before getting tubes put in his ears to help with ear infections and draining. Since he's been with us he has had 2 ear infections. Not too bad. However, Dave and I wanted to be certain we weren't overlooking anything and wanted to "cover all our bases". So, when we went yesterday we were expecting the doctor to say "No problems. All is well. Have a great day!". What the hell were we thinking? This is us. It's never that easy.
The doctor lets us know that Daniel has perforations in both ears. These are caused by multiple ear infections that have not been treated. So, he basically has a small hole in each of his eardrums. The hole in the left ear is 12% and the right is larger at 25%. He'll need to have surgery to close these holes, however, it cannot be done until he is older and his cleft has been corrected (possibly after age 5). So, what does this mean? He had to get sized for custom ear plugs for swimming and bathing. This will prevent water from entering the ear canal and causing more infections. That's minor. The bigger issue is the affect it may have on his hearing. So, off to the hearing test we go!
After several different types of tests, the audiologist confirmed that he does have minor hearing loss in both ears. Daniel was a trooper and did awesome through all the tests. I was shocked that he didn't rip the plugs out of his ears. I had to sit in the booth with him as they played the different sounds in the different directions. It made me sad when I heard the sound and he made no response. There's so much he's missing and we didn't even know it. So, basically the holes in his ears are causing hearing loss. This is minor hearing loss, however, it may mean he is missing a lot of the sounds, like Fs, THs, Ss. this is very important when learning to speak properly. So, the doctor and audiologist are suggesting hearing aids temporarily until they can repair the perforations. This would ensure that he can hear well until that time. We have another hearing test scheduled in 2 weeks to make sure the first tests were correct. We will make the hearing aid decision at that time.
Not at all what we were anticipating from this visit. Now I'm off to complain to our pediatrician's office. Daniel has been seen at least 3 times for well visits and ear infections. This means that on 3 separate occasions a doctor has looked in his ears. Not one mentioned any perforations. Gotta love modern medicine. Grrrrrrr........